We are very thankful that Madeleine has only had to have one surgery. In fact, this is why we chose to go the amputation route as oppose to lengthening and reconstruction. Although since Madeleine's foot has been amputated and her lower leg is missing the fibula people often think (myself included) that she no longer has leggie problems. That her 'disability' is confined to her lower leg and foot only but in actuality we entire left leg was affected. Her knee continues to grow deformed and her femur (thigh bone) continues to grow short. She will need another surgery in a few years to correct the position of her knee again.
I don't think of this too often. It is hard for me to consider having my child (either one of them) go through another surgery. We don't talk about it. Every 6 months when I see Dr. Mosca I ask him when the surgery will be. The response is always, "that depends on how her leg grows, 5, 6, 7 years old, not sure".
I have two friends whose babies went through a second surgery after amputation. My friend Rena's daughter Leah. Also born with Fib Hem. Her heal pad slipped (this is common in a syme amputation) and she needed to have it repositioned. And my dear friend Jenna's son, Logan. He need to have his hip corrected. Both children went through excruciating pain upon recovery. Both children spent several nights in the hospital. Both families went through the pain and agony of seeing their child suffer and knew the torture that there is absolutely nothing you can do about it except to hold them in your arms and try to reassure them that it will all be over quickly.
I know how they feel. And I have said a prayer for them a few times a day.
I will not discuss spirituality here but I will say that these mommas probably did not need my prayers. They are strong fighting ladies that will take someone down if needed. They are strong and confident for their babies.
Hope I can be the same for Madeleine when her surgery comes.